More tests this morning…Feeling much better and extremely hopeful…

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Stonehenge..

Is it possible I won’t have to have another open heart surgery? Based on test results so far, it’s looking like I may not need to. But the biggest test is upcoming on Friday, and the one I am dreading the most is a cardiac angiogram. It’s an unpleasant test. I’ve had it twice in the past.

If I could be anesthetized during the test, I wouldn’t mind so much, but this test is done while the patient is awake. The idea of being awake again for yet another one of these tests while they cut a hole in my groin or wrist, which they will have numbed with lidocaine, is a bit intimidating to me. Also, a mild sedative is usually provided.

There is no pain during the test, but the concept of a thin wire being threaded into my heart makes me cringe a bit. For some patients, this may not be an issue. Of course, it’s important to discuss concerns with the physician and the anesthesiologist who will be present during the test.

An angiogram is a medical imaging procedure used to visualize the inside of blood vessels and organs, primarily to identify and diagnose issues related to blood flow, such as blockages or abnormalities in arteries and veins. The procedure involves using X-rays and a contrast dye injected into the bloodstream, allowing doctors to see the blood vessels more clearly on the X-ray images.

Angiograms are crucial tools in diagnosing a range of cardiovascular conditions. When a patient experiences chest pain, shortness of breath, or unexplained fatigue, doctors may suspect an issue with the heart or the blood vessels supplying it. An angiogram can help determine whether there are any blockages or narrowing of the coronary arteries, which supply blood to the heart muscle. This is particularly important in diagnosing coronary artery disease (CAD), a leading cause of heart attacks.

It was in South Africa in February 2019 that I had an angiogram that determined that I needed immediate open heart surgery, which is called CABG (yep, pronounced “cabbage”), which is a “coronary artery bypass graft.”

Angiograms can examine blood vessels in other parts of the body, including the brain, kidneys, legs, and heart. For instance, a cerebral angiogram can help identify issues such as aneurysms (weak spots in blood vessels that can rupture) or arteriovenous malformations (abnormal connections between arteries and veins), leading to severe complications if not treated.

Undergoing an angiogram involves several steps, beginning with preparation. Patients are typically advised to avoid eating or drinking for several hours before the procedure. Once at the hospital, they may receive a mild sedative to help them relax.

The procedure usually occurs in a catheterization lab, a specialized room equipped with imaging equipment. The patient lies on a table, and the area where the catheter will be inserted is numbed with a local anesthetic. The catheter, a thin, flexible tube, is inserted into a large artery, usually in the groin or wrist, and carefully threaded through the blood vessels to the area of interest.

Once the catheter is in place, the contrast dye is injected through it. As the dye travels through the bloodstream, it highlights the blood vessels on the X-ray images, allowing doctors to see any areas of concern. Patients may feel a brief warm sensation or a flush as the dye is injected, but this is typically mild and short-lived.

The entire procedure usually lasts about 30 to 60 minutes, though it can vary depending on the case’s complexity. After the angiogram, the catheter is carefully removed, and pressure is applied to the insertion site to prevent bleeding. Patients are typically monitored for a few hours to ensure no complications before they can go home, though some may need to stay overnight.

Like any medical procedure, an angiogram carries some risks, though they are generally low. Potential complications can include allergic reactions to the contrast dye, bleeding or bruising at the catheter insertion site, and, in rare cases, damage to the blood vessels or kidneys. However, the benefits of accurately diagnosing potentially life-threatening conditions often outweigh these risks.

Patients need to discuss their medical history with their doctor before the procedure, particularly if they have allergies, kidney problems, or are pregnant, as these factors can influence the safety and approach of the angiogram.

Following an angiogram, the results will help guide the next steps in a patient’s care. If a blockage or narrowing is found, doctors may recommend further treatments such as angioplasty (a procedure to open the narrowed arteries) or surgery. Sometimes, the angiogram might lead to lifestyle recommendations, such as dietary changes, exercise, or medications to manage the underlying condition.

Overall, an angiogram is a vital diagnostic tool in modern medicine. It provides detailed insights into blood vessels’ health and helps inform treatment decisions that can save lives. This procedure combines advanced technology with expert medical care to ensure the best possible outcomes for patients.

This morning, after being off the high-risk Flecainide for five days, I had a repeated stress test. I completed the test but am not confident that the results were ideal based on the conversations between the three technicians performing the test. But I could be wrong. Within the next few hours, after the doctor has accessed and documented the test results, I’ll be able to see his assessment in My Chart. I wait patiently.

After Friday’s angiogram, I’ll know even more. We’ll continue to post results.

Be well.

Photo from ten years ago today, September 3, 2014:

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Tom, at Stonehenge, England. It was a rainy day, and we were soaked, but we took many photos. For more photos, please click here.

Moving day…Holding my own…For our US readers, please have a safe Labor Day!…

We visited Normandy, France, ten years ago. A mannequin of Pvt. Steele, which still adorns the church at Sainte-Mère-Église, memorializes the paratroopers who jumped into Europe on D-Day, June 6, 1944. For more information about this event, please click here.

We booked the Residence Inn by Marriott, Cleveland Clinic, a few days ago, from today, September 2 to December 2. Without enough info on my prognosis and treatment yet, we have no idea how long we’ll have to stay in Cleveland. If we need to stay longer, we’ll book more days accordingly.

Again, by contacting Marriott’s Bonvoy Club, we got a better rate than at any other site, saving as much as $50 daily. When we booked it for three months, we didn’t have to pay for all three months in advance and could pay weekly, as we did at another Residence Inn in Eden Prairie, Minnesota. We prefer not to pay for hotels so far in advance.

Paying weekly works for us, making reviewing the weekly room charges easy. Since they don’t have a regular restaurant, we’ll unlikely incur additional charges. As in most residence-type hotels, breakfast is included; although it’s basic with processed scrambled eggs, boiled eggs, bacon, sausage, bacon, cereal, toast, processed pancakes, coffee, and tea, it’s OK for us.

I don’t eat processed foods and usually choose hard-boiled eggs, bacon, and decaf coffee. Since we don’t eat lunch, we’re on our own for dinner. With several tests at the clinic this week, we’ll most likely order dinner from a delivery service. A few tests are somewhat invasive, and I may not feel up to preparing dinner.

Also, after being off the Afib drug for the fourth day, I am experiencing a few symptoms of suddenly stopping the Flecainide as required by the cardiologist I saw on Thursday. So far, I have only had a few quick bouts of Afib and heart rate increases, but overall, I am feeling better being off of this FDA Black Box drug, which ultimately is a dangerous drug.

We are mostly packed, although we didn’t start until yesterday. We’ve already wrapped up the remainder this morning. We hardly unpacked anything for this one-week stay, but once we arrive at the new location, we’ll unpack everything we’ll need to use in the next three months.

We are locked into a 91-day stay and will be charged a one-month penalty if we leave early. Based on the nightly rate savings, we figured it would be worth it if we could leave early. We won’t head to South Africa until after Christmas and the hot summer months have ended. (Seasons are opposite in the Northern Hemisphere than in the Southern Hemisphere).

If all goes well, we can head to Marloth Park around April, seven months from now. If we leave here early, we’ll have to find somewhere to go while we wait to leave for Africa. We aren’t concerned about that now. As Tom always says, “Don’t put the cart before the horse,” which is hard for me as a perpetual planner.

We’ve received an unreal number of messages from our family members, friends, and readers. A special thanks to each of you for your kind and supportive comments. I try to respond to each one individually, but I will never get to everyone. If I don’t reply, please know how much we appreciate your comments, love, and support! We read every message that comes our way, which is taking up the better part of each day right now. What a meaningful way to spend an otherwise uneventful day in a hotel room when we’re not at the clinic!

Tomorrow, tests begin again at 9:30 am. If it takes all day, we won’t be preparing a post. If we get done early, we’ll write to all of you.

Be well.

Photo from ten years ago today, September 2, 2014:

No photos were posted on this date as we made our way to Stonehenge, England. More tomorrow.

Was incompetency the issue?…Using delivery services worldwide..

The region of Normandy is rich in history and charming for its appealing French architecture of the century’s past.

A few nights ago, we placed a food order with DoorDash, an often-used delivery service that includes ordering from restaurants, pharmacies, retail shops, pet supplies, beauty products, and more. We have nothing negative to say about DoorDash since we’ve always had good experiences using their services, along with GrubHub or Instacart, to name only a few such delivery services.

When we placed the Chinese food order on Friday evening, when our delivery time passed, I called the driver to discover he’d delivered the food to the wrong Intercontinental Hotel, Cleveland Clinic. There are two such hotels near the Cleveland Clinic, including the one where we’ve been staying, a few blocks away, the Intercontinental Hotel Suites, Cleveland Clinic. It was an easy mistake to make.

When I called the driver, he said he was already 25 minutes away but would return to collect the food and bring it to our hotel. An hour passed, and the food wasn’t delivered. He wouldn’t answer his phone. When I called the hotel where the food was delivered, they said they couldn’t get it to us.

We were hungry and didn’t care for a refund, so Tom left on foot to walk to the other hotel to collect our food. Fortunately, he managed to catch a Cleveland Clinic shuttle to return to our hotel. Surprisingly, the food, two hours later, was a little warm. We reheated our plates in the microwave, and by 8:00 pm, we could have dinner.

This is not to say delivery companies are incompetent. This was the first time we’ve ever had an issue, and we won’t hesitate to use delivery services in the future. It was more of a fluke. The only disappointment was that the driver promised to bring us the food but chose not to.

Many delivery companies are international, which we’ve also used when available in other countries. However, to ensure accuracy, we use them more often in the US and English-speaking countries, and when ingredient specifications may not be clearly defined for my way of eating.

Navigating the World of Food Delivery: A Journey Across Continents

As the sun dips below the horizon and the city lights begin to flicker, a universal hum unites people from New York to New Delhi, from Paris to Tokyo—a craving for comfort, convenience, and connection. In the modern world, where time often feels like the most precious currency, food delivery services have emerged as the bridge between our busy lives and the nourishment we seek. This phenomenon, while global in reach, carries distinct flavors and emotions that vary as widely as the cuisines it delivers.

The United States: Convenience at Your Doorstep

Food delivery has become synonymous with convenience, speed, and choice in the United States. The sheer variety of options is staggering. Whether craving a greasy cheeseburger at midnight or a vegan quinoa salad during a lunch break, services like Uber Eats, DoorDash, and Grubhub fulfill almost any culinary wish. The ease with which one can browse, select, and order a meal with just a few taps on a smartphone is a testament to the country’s love affair with instant gratification.

But beneath this veneer of convenience lies a deeper psychological layer. For many, ordering food is not just about satisfying hunger—it’s about comfort, especially in times of stress or isolation. Selecting a meal, waiting for its arrival, and finally indulging in it can be a soothing ritual, particularly in a society where people often feel disconnected from the traditional cooking at home. The delivery person becomes a temporary link to the outside world, a reminder that even in solitude, there’s a connection to the broader community.

The pandemic amplified this dynamic. With lockdowns forcing people indoors, food delivery services became a lifeline for many. Not just a way to avoid cooking but a small luxury—a way to break the monotony of endless days spent at home. The arrival of a delivery driver was sometimes the most human interaction people had in a day. It’s a service that offered a sense of normalcy in a time when nothing felt normal.

Europe: A Blend of Tradition and Modernity

In Europe, the relationship with food delivery is a bit more complex. On one hand, cities like London and Paris have embraced services like Deliveroo and Uber Eats with the same enthusiasm seen across the Atlantic. But on the other hand, there’s a deep-seated appreciation for traditional dining experiences. The leisurely meal at a café and the ritual of shopping for fresh ingredients at a market are cultural staples many Europeans are reluctant to abandon.

In cities like Rome or Barcelona, food delivery often feels like a convenience reserved for the rushed, the overworked, or the young urbanites who prioritize efficiency over tradition. Yet, there’s an exciting fusion happening. High-end restaurants that once resisted the idea of takeaway now offer gourmet meals delivered to your door, complete with detailed instructions on how to plate the dish just as the chef intended. This blend of old-world charm and modern convenience reflects Europe’s ability to adapt while still holding on to its roots.

Food delivery is still a novelty and unnecessary for many Europeans, especially those in smaller towns or rural areas. The psychological relationship with food is steeped in the idea of communal dining, of meals being an event rather than just sustenance. Therefore, while the convenience of food delivery is appreciated, it is not yet a replacement for the deep cultural significance of cooking and sharing food.

Asia: A Symphony of Flavors at Your Fingertips

In Asia, food delivery has taken on a life of its own, shaped by the region’s rich culinary diversity and the fast-paced nature of its urban centers. In cities like Bangkok, Seoul, and Tokyo, food delivery isn’t just about convenience—it’s an integral part of daily life. The options are as varied as the cultures within Asia itself. One can order anything from sushi to street food-style snacks, all with the expectation of speed and precision.

In many Asian countries, the rise of food delivery services has also sparked a unique cultural shift. Traditionally, meals were a family affair, prepared at home with care. However, the demand for quick and easy meal solutions has surged as more people migrate to cities and adopt hectic lifestyles. Apps like GrabFood in Southeast Asia and Meituan in China have revolutionized how people think about food, making it possible to access a vast array of dishes with minimal effort.

Yet, this shift comes with its own set of psychological implications. The convenience of food delivery can sometimes lead to a sense of disconnection from the act of cooking and the rituals surrounding meal preparation and consumption. In societies where food is deeply intertwined with identity and tradition, this can create a subtle but significant tension between modern convenience and cultural preservation.

A Global Appetite for Connection

Across the globe, food delivery services have become more than just a way to satisfy hunger. They reflect our collective need for connection, comfort, and control in an overwhelming world. Whether it’s the convenience of a late-night burger in New York, the fusion of tradition and modernity in Paris, or the symphony of flavors in Tokyo, food delivery offers a unique window into how we navigate our lives and identities.

Ultimately, no matter where we are, ordering food is about more than just eating. It’s about the emotions that come with it—the anticipation, the satisfaction, the comfort. And in a constantly changing world, that’s something we can all relate to, no matter where we call home.

Tomorrow, after we move to our new location, only blocks away, we’ll place a to-be-delivered grocery order since we’ll have a fully equipped kitchen where we can again prepare easy meals. It will be nice to get settled.

Happy September! To our friends and family in the US, have a safe Labor Day weekend!

Be well.

Photo from ten years ago today, September 1, 2014:

The Normandy American Cemetery and Memorial in Normandy, France. For more photos, please click here.

And the saga continues with a big challenge over the next few days…

On this date in 2014, our ship was Royal Caribbean’s Brilliance of the Seas.

There are no words I can write to describe how safe I feel being at Cleveland Clinic in Ohio, in the competent hands of professionals, none of which I’ve experienced in the past. Every doctor or technician I encounter has the utmost credentials, exhibits kind and caring service, and treats each patient individually, not just as a number and income source in the system.

Doc Theo, a family practice physician in South Africa, was the only other doctor I’ve ever seen who was so qualified, caring, and competent. I last saw him in April 2023, 16 months ago. Since that time, with escalating heart-related problems, I sought the help of a few cardiologists as we traveled from South Africa to Ecuador to Nevada.

The most accurate test results I received were in South Africa. Still, the cardiologist in Ecuador last October and then in Nevada in March misdiagnosed my issues, according to the tests and doctors I have seen at Cleveland Clinic, only in the past few days. The problems I have with my cardiovascular system are still not fully diagnosed, with many more tests on the horizon that have nothing to do with my valves.

First, I met with Dr. Grimm, a heart “plumbing” specialist. He’d ordered numerous tests, including an angiogram, yet to be scheduled, an invasive test to see the status of the patient’s veins and arteries, done in the cath lab. Yesterday, we were waiting to hear about other tests to be scheduled to complete my diagnosis. I was told to call Dr. Grimm’s office at the clinic to arrange my future appointments.

When I was on hold, the scheduler finally came to tell me my next round of appointments would begin on November 7. I was shocked! Did I not just wait four months to start this process? She explained that many others were waiting ahead of me and that she could do nothing about it.

When I explained my symptoms, leaving me in a wheelchair to get around, I kindly asked her to do better. November 7th wouldn’t work for me. I was very diplomatic. She asked me to stay on hold, and she’d see what she could do. I waited a full 20 minutes to have her return on the line asking if we could get back to the clinic in 20 minutes for an appointment with the doctor who is a specialist in the heart’s electrical systems, an electrophysiologist, Dr. Keogh.

Within five minutes, we were out the door after asking the front desk to order a Cleveland Clinic shuttle, one of which makes a loop in the area hotels from 6:00 am to 10:00 pm. Within minutes, the shuttle arrived, and we made it to Dr. Keogh’s reception area.

After we arrived, I checked My Chart to see if the appointment with Dr. Keogh wasn’t until 4:00 pm. It was 12:30 pm. This wait would be better than waiting until November 7th! Moments later, Dr Keogh’s nurse escorted us to his office. He’d had a no-show and could see me now. Tom and I giggle that it was “safari luck,” an expression we’ve always used when we had great sightings on the many safaris we’ve experienced.

Minutes later, Dr. Keogh entered the room, and his expertise and knowledge far surpassed any cardiologists we’d seen in the past. I felt like I was in the best of hands. The first thing he told me was I had to stop taking the dangerous drug Flecainide, which I have been taking for Afib since last October when we were in Ecuador. It was the only afib (for heart rhythm control) that worked for me.

Ecuador doesn’t allow that drug to be prescribed in their country. When I couldn’t any more than the one month’s supply I had on hand, we left Ecuador and headed to Nevada, where a cardiologist said I had terrible valve disease and needed surgery immediately. He didn’t hesitate to prescribe more of the drug until I could have surgery on my valves.

Dr. Keogh explained this drug could kill me with a massive heart attack and I must stop it now. It’s been 26 hours since my last dose. The drug leaves one’s system in about 48 hours, when the Afib undoubtedly will return. When he reviewed all of my tests thus far, and I explained that Flecainide prevented my heart rate from going above 90, the stress test I’d had on Thursday could have been inaccurate.

When we left his office, he said he’d devise a plan for me and get back to me soon. Time is of the essence when I am going to be in what is called persistent Afib within two days when the drug is out of my system. When we returned to our hotel room, my phone rang. It was Dr. Keogh. He decided I needed to retake the nuclear stress test without Flecainide in my system. Then, he could better determine where to go from there, such as a pacemaker, ablation, surgery, or other treatment modalities.

Within minutes, I received a message from My Chart stating I had a new appointment, rescheduled for another nuclear stress test on Tuesday at 9:30 am. It was such a relief, especially knowing by then, I’d be experiencing awful Afib. Dr. Keogh didn’t want me on any Afib drugs for the repeated test. He explained that if the Afib gets too awful, we should head to the emergency room to oversee my care. That was comforting.

Now, I’m scheduled for the angiogram next Friday instead of November 7th. And so it goes with more tests and an upcoming scary few days, especially when we are moving to the new hotel on Monday. Whew.

I can’t express enough gratitude for the love and support I have been receiving from so many of our worldwide friends and readers. You all mean the world to both of us!

To all of our family, friends, and readers in the US, have a safe and enjoyable Labor Day weekend and a happy weekend for our international readers.

Be well.

Photo from ten years ago today, August 31, 2014:

We were on Royal Caribbean Brilliance of the Seas. The following day, we were off on our first tour to Le Havre/Normandy, France, for an all-day excursion to see WWII Omaha Beach, Utah Beach, and American Cemeteries. For more photos, please click here.

“It’s always something. If it’s not one thing, it’s another”…

South Kensington consists of one pretty street after another, with parking always at a premium.

My sister Julie often reminds me of the humor from Rosanne Roseannadanna from “Saturday Night Live” when Gilda Radnor said, “It’s always something! If it’s not one thing, it’s another.” See the video here for a chuckle.

It’s so true. None of us are exempt from life’s unexpected turns, which can result in serious situations requiring an enormous amount of time and effort to resolve, all the way down to minor annoyances that may only need a few minutes of our time and little effort to resolve.

Ironically, we get angry and upset over minor annoyances when most of us handle life-changing issues with resolve and determination. That’s where we are right now. We’re leaning into accepting whatever health situation I am presented with over these next few months, but we are annoyed with the small things we encounter along the way.

The only annoyance we encountered associated with our experiences at Cleveland Clinic was on Wednesday when I appeared for the first round of tests in the cardiac unit when my Medicare number couldn’t be entered into their system for some reason. The night before my appointments, I had tried dozens of times to enter my Medicare number into “My Chart,” the medical information system available for doctors and patients.

In “My Chart,” appointments, notes, test results, and communication with medical staff are readily available promptly. Many medical facilities use this system for their patients, which most patients find helpful in reviewing their care processes.

Two days ago, I felt compelled to complete my file before my upcoming appointments on Wednesday. The app kept reminding me to accept my insurance information but to no avail. On Tuesday night, when we went to bed, I worried about why my Medicare number wasn’t accepted into their system.

Awake early on Wednesday morning, I tried again, but to no avail. I called and spoke to tech support for My Chart at Cleveland Clinic, and the rep said, “No worries. They’ll enter the number when you check in for your first appointment at the desk.” That was a significant relief.

Once we arrived at “imaging” for my first appointment, the rep at the desk couldn’t get the system to accept my Medicare info either. After 15 minutes of trying, even with the help of other staff members, we were sent to a different office where a particular tech support person, 15 minutes later, somehow managed to get the Medicare number into the system. We hurried back to imaging for my appointment.

Fortunately, we are always the “early birds,” and we made it to the appointment on time. Since we had three appointments, one after another, we were concerned. If we missed the first one, we could be late for all of them. After all, we waited for these appointments for four months. It would be a fiasco if we missed any of them. Whew!

From there, everything went smoothly at Cleveland Clinic. But in the past week, another medical insurance-related issue cropped up. A week before we left Minnesota, I received a bill for $1300 from Park Nicollet from my recent stay at Methodist Hospital when I had that horrific blood pressure event requiring me to go to the hospital by ambulance. Why did I get a bill for $1300 when I purchased the zero deductible supplement Plan G with Aflac, along with Medicare Part B?

I’d already paid the annual Part B deductible of $240 when I went to the cardiologist in Nevada in March. I ended up on the phone with Pak Nicollet’s customer service for at least 20 minutes to resolve the $1300 bill, and then, a few days ago, I got another bill for $83.32 from that hospital visit. Today, I called again and discovered they had no information on my Aflac supplement, which I’d provided at least twice during the hospital stay.

Plus, they had my name wrong, using only my first and middle name along with the wrong phone number, again, which I provided on several occasions. The customer service rep retook my Aflac information this morning, and the bill is gone. Such an annoyance!

Now, I discover there is nothing wrong with my valves. Whatever is wrong with my heart is not related to my valves. I had three tests in different countries, all stating I desperately needed valve surgery immediately. The echocardiogram I had here at Cleveland Clinic took twice as long and was more thorough than any of the three previous tests. Go figure.

Last night, I received the results of yesterday’s nuclear EKG that stated, in part, the following, as quoted:

‘EKG  reviewed from stage 2 of Cornell 0% and consistent with exercise-induced type 2 second-degree AV block. This is a very abnormal stress test.”

I’ve researched this comment, but the answers are unclear. I guess I have to be patient and let the professionals determine a proper diagnosis and treatment, whether it’s surgery or other treatment. By Tuesday (due to the holiday weekend), I have more appointments scheduled for next week, with more diagnostic tests, including an angiogram, the test I’m dreading the most. Ugh!

So, I’ve handled some annoyances hanging over my head right now. We’ll see what pops up next. Tomorrow, we’ll share where we’ll be over the next three months as we work through this medical process.

Be well.

Photo from ten years ago today, August 30, 2014:

This was the shortest car we had ever seen in South Kensington, England. For more, please click here.

The process continues…No news yet…

In the Charles Darwin wing of the Natural History Museum, there were many interesting displays of insects, butterflies, and small creatures.

After three echocardiograms in three different countries showing severe mitral and tricuspid regurgitation, which prompted us to come to the Cleveland Clinic, we’ve found that my valves are moderate and not severe based on the more comprehensive echocardiogram I had yesterday. I do not need valve surgery.

However, after many other tests, including blood tests, it appears something is very wrong with my heart, requiring more doctor visits and invasive tests. This morning, I had a nuclear stress test, which started with a heart scan with injected radioactive isotopes, followed by a stress test.

They stopped the stress test early when it was too dangerous for me to continue and considered using a blood vessel-dilated intravenous drug as an alternative. Still, the doctor refused to have me injected with the alternate medication for a lay-down stress test since it, too, was too dangerous with the awful EKG (ECG) they were reading on the screen.

Soon, I have to call the cardiologist we saw yesterday to be referred to another cardiology specialist to go to the next step. My not-so-good blood test results are pointing to other possible heart conditions, and at this point, we have no idea what’s on the horizon. My past cardiac bypass surgery may have failed, which may require another open heart surgery.

After I had the bypass surgery in South Africa in February 2019, the cardiothoracic surgeon explained I might get eight years out of that surgery. Now, I am 5½ years old since the major surgery, and it may have run its course earlier than expected.

We’ll continue with as many more tests and doctor visits as possible to have a complete diagnosis and treatment plan in the next few weeks.

The thoroughness, competency, and care exhibited by all Cleveland Clinic employees, from the reception desk staff to the highly specialized doctors, are outstanding. We couldn’t feel more at ease being here. A big sign in some lobby areas states, “Cleveland Clinic is recognized as the #1 cardiac center in the world.” We knew this, but it was comforting to see it, making us realize we’d done the right thing by coming here.

The hotel is nice, but we plan to move on September 2 to the nearby Residence Inn by Marriott, which also has a shuttle to the clinic. Due to demand, hotel prices are high here, but we have to bite the bullet and see what kind of deal we can get from Marriott’s Bonvoy perks program since we are members. We’ll be calling today to see the pricing we can arrange.

Am I nervous or afraid? Surprisingly, not. We’re always enjoying our time together, staying upbeat and hopeful. Tom is a perfect wheelchair operator, and we often laugh over the incredible nature of my being wheeled everywhere.

Some may say, “How do I so freely share such intimate details of my health?” However, hundreds of readers have written our vulnerability has helped them with their worries and concerns. If we can help one person gain comfort during their health challenges, it will be worth every revealing moment.

We are not special. Like many of you, we are trying to navigate challenging times in our lives using whatever means are available to us with dignity, persistence, and humility.

Be well.

Photo from ten years ago today, August 29, 2014:

This is an actual bee, with its size as shown at the Museum of Natural History in South Kensington, England. For more photos, Please click here.

Today’s the day…It’s been a long wait…Test results to follow as soon as we know…

Day #160 in lockdown in Mumbai, India hotel…The frightening reality…
Walking down the street from our hotel in South Kensington, London.

Last night’s attempt at sleeping was fitful, filled with short naps and vivid dreams. As it turned out, I forgot to remind Tom to put “Do Not Disturb” on his phone, and every few hours, it beeped, waking me up when a message came in. Since he doesn’t hear the beeps with his impaired hearing and without his hearing aids while sleeping, he doesn’t notice.

But my sharp hearing picks up every little sound during the night, especially since I am a light sleeper. It was a long and uncomfortable night. I imagine that, with a bit of anxiety about today’s appointments flooding my thoughts when awake, I couldn’t find a way to escape them, regardless of how hard I tried to reframe my thinking.

When I got up this morning, I felt better and ready to tackle the realities of today, but going downstairs for a big breakfast in the restaurant was the last thing on my mind. Instead, Tom brought me decaf coffee from the complimentary service in the lobby. I ate one of my new favorite, very healthy protein bars, IQBar, which can be found at Amazon (please click our Amazon link on our site) and here.

These bars have the most healthy ingredients of any bars I’ve tried and are delicious, a perfect meal replacement or snack. That was all I needed today. The “My Chart” notes didn’t indicate that I’d need to fast for any blood test. I’m sure I’ll have many blood tests down the road, but not today.

Using the HDMI cord, we’re watching the “Garage Logic” podcast from the Minnesota State Fair on the TV monitor. It’s fun to see the guys at the fair. Had I not been having the breathing issue and needing a wheelchair, we certainly would have gone to the fair to see them. Joe continues to mention “the Traveling Lymans” every broadcast, five days a week, which always brings a smile to our faces.

At 11:00, we’ll call the front desk to have them order the Cleveland Clinic shuttle, which will take us to the building specified in “My Chart” for my first appointment. My last appointment is scheduled for 3:30 and lasts one hour. We should know something by the end of the day, but we are prepared that we won’t know much until the next round of tests, the dates for which are yet to be determined.

We should return to the hotel by 5:00 when we assemble a roast chicken dinner from the grocery order we placed yesterday. There will be enough chicken, rice, and salad for a few dinners. At that point, we’ll settle in for the evening and stream a few shows. Without a car, we would not be interested in going out for the evening.

That’s all we have today, folks. Soon, we’ll order the shuttle and be on our way. We’ll be back with more tomorrow.

Be well.

Photo from ten years ago today, August 28, 2014:

Ah, my heart flipped at the sight of this warthog at the Museum of Natural History in South Kensington, Londo. The first time we had seen a warthog was in October in the Maasai Mara, Kenya, while on safari. Of course, later in South Africa, we joyfully saw them several times a day. Click here for the first time we saw a live warthog (scroll down the page. For more photos, please click here.

We’ve arrived in Cleveland!…Clinic appointments begin tomorrow…

This is artwork from the Victoria and Albert Museum, which we could walk to from our South Kensington, UK hotel.

What a relief to be here. If something goes wrong, I am where I’m supposed to be. Although I am a little anxious about what’s to come, the peace of mind of finally being here outweighs any apprehension. No doubt, most of us feel a little out of sorts when facing significant medical appointments when we have no idea as to the outcome.

Will I have surgery right away? What if I must wait for a surgical opening for another few months? Will the breathlessness worsen while I wait? Hopefully, these questions will be answered in the next few weeks or sooner. In any case, knowing what is on the horizon will give us both peace of mind to finally know what is upcoming.

The two-day drive was easy when we only drove about 350 miles each day, allowing us to stop for breakfast, a restroom break, and refueling without feeling rushed. We arrived at the Cleveland Clinic complex around 4:00 pm. Little did we know there were two Intercontinental Hotels in the immediate area.

We ended up at the wrong hotel, the Intercontinental when we were booked at the Intercontinental Suites Hotels, a few blocks away. In no time, Tom maneuvered me in the wheelchair back to the car, and off we went to the correct location, having no trouble finding it.

No words can express how grateful I’ve been to have the wheelchair. Thanks to many readers who encouraged me to buy one during this challenging time. It was the best purchase we’ve made in years. Hopefully, after recovering from my treatment and recovery, I won’t need to use it.

There are some nuances in using a wheelchair when, in fact, I can still walk unassisted about 20 feet without gasping for air. This morning, at the breakfast buffet in the hotel ($22.00 per person plus tax and tip), I insisted on getting out of the chair to serve myself. Tom was concerned I’d have a problem, but the short buffet was within the 20-foot range, and I did fine. It would have been tricky to serve myself while seated. I’m trying to maintain a level of independence. I’ll need constant help after surgery, so I’d like to preserve a little leg strength and mobility while I can right now.

Last night, we ordered room service, and it was mediocre. I ordered the most sparse Cobb salad I’ve ever had, and Tom had a grilled cheese sandwich with potato chips. That bill was almost $50. We’re trying to keep our daily food purchases $80 – $100 daily, leaving us with $50 for breakfast and $30 – $50 for dinner.

Thus, we decided to order some groceries from a local market, with free delivery from Instacart for the next month. This morning, I ordered two roasted chickens, two premade chicken and veg salads, and cooked white rice for Tom. Our room has a refrigerator and a microwave, and the grocery order was $34, including tax and delivery. There’s enough food to get us through three to four dinners. We’ll only be in this hotel until September 2.

Once we know what the future holds, we’ll move to a nearby Residence Inn by Marriott to stay through my recovery, for however long that may be. Once we know what’s on the horizon, we’ll book the Residence Inn through Bonvoy member benefits for a reasonable price, as we did at the same hotel in Eden Prairie, Minnesota.

How are we holding up? Actually, very good. We are upbeat and looking forward to getting all of this behind us so we can continue our world travels.

My first appointment is at 12:45 pm tomorrow, and we don’t need to arrive until noon to check-in. A Cleveland Clinic shuttle will pick us up and take us where we need to go, which information is clearly outlined in “My Chart.”  From there, I have two more appointments. We should be done tomorrow by 5:00 pm, with more appointments to be arranged in days to come.

Be well.

Photo from ten years ago today, August 27, 2014:

Our new friend/reader, Liz from Bristol, England, took the train to visit us while we stayed in South Kensington, England. Meeting Liz, with whom we’ve stayed in touch over the years, was a joy. For more photos, please click here.

Six days and counting..Will we post during the road trip?…Did my wheelchair arrive?”…

We often take photos of nearby restaurants and later look up reviews on TripAdvisor. In this case, in South Kensington, London, it ranked #1572 out of 17,134, making it in the top 9%, perhaps worthy of a visit.

Although, at this point, I struggle to prepare a post daily, we both appreciate your continued readership. The problem is more about deciding on a topic for the day, rather than putting it all together. Once I have a topic depicted in the heading, I can breeze through the post in a few hours with relative ease.

Right now, I don’t have the oomph to tackle a complicated topic requiring research and planning. As we have over the past many months since we’ve been in the US, the topics are most light and lacking major content, except for a few unique posts here and there with travel information.

With the road trip in six days, I’ve decided to continue to post using the app on my phone during the two-day drive. Most likely, I won’t add photos unless we encounter some interesting sightings along the way, nor will we include the “ten years ago photo.”

We have a lot to do to prepare to leave next Sunday, but we will try to continue posting over the next several days until we hit the road next Sunday.

My wheelchair arrived yesterday from Amazon. We were pleased that it was mostly put together. It only took Tom about 10 minutes to add and set the footrests. To my surprise, it’s very sturdy and comfortable, and it costs only $115 at Amazon with one-day shipping with Prime. It folds and unfolds easily and will travel well.

I now accept that buying a wheelchair was a practical and sensible decision. We tried it yesterday when we had to go to the office to print a document, and Tom carefully wheeled me over a few bumps and uneven pavement. But it worked well. It felt odd to suddenly appear at the reception office, sitting in a wheelchair when everyone at the desk was used to seeing me walking. But they were friendly as usual. No doubt, they were curious why I was in the wheelchair, but I didn’t say a word.

We have no social plans today through Tuesday but will go to TJ’s home for a barbecue on Wednesday. On Thursday, my dear friend Karen will be in Minnesota for business, and we’re planning a late lunch at Jimmy’s Kitchen and Bar. On Friday, I am having a pedicure with my dear friend Chere.

In each case, Tom will transport me both ways while I am using the wheelchair. In the late afternoon on Friday, we’ll head to Billy’s for our final get-together with Tom’s siblings. We’ll most likely see Greg’s family on Saturday. Two of the five of them have had COVID-19 these past weeks, and we’ve been avoiding getting together with any of them. We’ll see how they’re doing by Saturday before planning anything.

This morning, I made a batch of chicken salad for tonight’s dinner, and yesterday, I made shrimp salad. I can easily stand on my feet to cook in the small kitchen. We’ll have both salads tonight and tomorrow night, with a green salad on the side. Easy peasy.

That’s it for now, dear readers.

Be well.

Photo from ten years ago today, August 19, 2014:

We walked past Christie’s in South Kensington, London, where we stayed for two weeks. The world-famous auction house occupies almost the entire block. For more photos, please click here.

We booked a hotel at Cleveland Clinic…

A craggy shore in Madeira, Portugal.

With only 50 days until we leave for Cleveland, it was time to book something for at least our first week there. At this point, we have no idea how long all the tests will take before the surgery is scheduled or how far out the surgery will be scheduled. There may be many patients in much worse condition that will be scheduled ahead of me, of course, depending on how I am doing at the time of my first three appointments on August 28.

If I am “holding my own,” it could be two or three months until the surgery is scheduled. The question is, “Do we stay in Cleveland in case of an unforeseen event requiring immediate surgery? Or do we go somewhere else while we wait?”

Only time will tell, along with the test results determining the urgency of my case. Right now, my only obvious symptoms of valve disease are difficulty walking and occasionally being out of breath. I don’t have the classic swollen legs and chest pains, which are severe symptoms of the condition.

However, the two valves have been diagnosed by three cardiologists and echocardiograms as being “severe,” which, untreated, could result in a stroke or heart attack if left too long without treatment. There are no drugs that can prevent these potential outcomes.

In reality, regardless of how long we have to wait for surgery, we’re better off staying there than in some other city in the US. We must play it by ear and see what transpires during that first week or two.

As a result, we booked only one week at a hotel connected to the clinic with a shuttle service back and forth to the hospital. Finding an affordable hotel was a lot trickier than expected. We were willing to pay more than usual for the convenience of the first week of tests and may have to extend it if further testing is required. There again, we have no idea at this point.

This morning, we started searching online. We were particularly interested in the Intercontinental Hotel, Cleveland Clinic, since it is .2 miles from the hospital, which has a shuttle back and forth, preventing us from the necessity of renting a car for the first week. Here are the prices we encountered:

Expedia.com

InterContinental Cleveland, an IHG Hotel

$284
InterContinental Cleveland, an IHG HotelOfficial site
$329
DEAL

14% off

Hotels.com

$329
Hotels.com
Free cancellation until Sep 8

Priceline

$329
Priceline
Free cancellation until Sep 7
All options

InterContinental Cleveland, an IHG Hotel

$284
InterContinental Cleveland, an IHG HotelOfficial site

Hotels In America

$294
Hotels In America
With these high prices, most of which didn’t include taxes and fees, we searched further from Expedia on our website at the link on the right side of our page. Because we are Platinum members and use $46.00 in One Key cash, we could book the week for an average of $211 per night.
Of course, these perks may not be available to those using Expedia infrequently, but we’ve found it’s an excellent place for frequent travelers. Building relationships with various sites that provide excellent pricing for their frequent users takes time and effort.
Once we have completed the first round of tests after consulting with the doctors, we can make a plan for our future stay. We may stay a few miles from the clinic, where prices are considerably lower. We might stay further away during a waiting period and move closer once the surgery transpires. We shall see.
That’s it for today, dear readers. Thanks for all the well wishes, supportive comments, and emails regarding our Fourth of July post two days ago.

Be well.

Photo from ten years ago today, July 6, 2014:

Even a cloudy day in Madeira, Portugal, has some appeal. For more photos, please click here.