There are no words I can write to describe how safe I feel being at Cleveland Clinic in Ohio, in the competent hands of professionals, none of which I’ve experienced in the past. Every doctor or technician I encounter has the utmost credentials, exhibits kind and caring service, and treats each patient individually, not just as a number and income source in the system.
Doc Theo, a family practice physician in South Africa, was the only other doctor I’ve ever seen who was so qualified, caring, and competent. I last saw him in April 2023, 16 months ago. Since that time, with escalating heart-related problems, I sought the help of a few cardiologists as we traveled from South Africa to Ecuador to Nevada.
The most accurate test results I received were in South Africa. Still, the cardiologist in Ecuador last October and then in Nevada in March misdiagnosed my issues, according to the tests and doctors I have seen at Cleveland Clinic, only in the past few days. The problems I have with my cardiovascular system are still not fully diagnosed, with many more tests on the horizon that have nothing to do with my valves.
First, I met with Dr. Grimm, a heart “plumbing” specialist. He’d ordered numerous tests, including an angiogram, yet to be scheduled, an invasive test to see the status of the patient’s veins and arteries, done in the cath lab. Yesterday, we were waiting to hear about other tests to be scheduled to complete my diagnosis. I was told to call Dr. Grimm’s office at the clinic to arrange my future appointments.
When I was on hold, the scheduler finally came to tell me my next round of appointments would begin on November 7. I was shocked! Did I not just wait four months to start this process? She explained that many others were waiting ahead of me and that she could do nothing about it.
When I explained my symptoms, leaving me in a wheelchair to get around, I kindly asked her to do better. November 7th wouldn’t work for me. I was very diplomatic. She asked me to stay on hold, and she’d see what she could do. I waited a full 20 minutes to have her return on the line asking if we could get back to the clinic in 20 minutes for an appointment with the doctor who is a specialist in the heart’s electrical systems, an electrophysiologist, Dr. Keogh.
Within five minutes, we were out the door after asking the front desk to order a Cleveland Clinic shuttle, one of which makes a loop in the area hotels from 6:00 am to 10:00 pm. Within minutes, the shuttle arrived, and we made it to Dr. Keogh’s reception area.
After we arrived, I checked My Chart to see if the appointment with Dr. Keogh wasn’t until 4:00 pm. It was 12:30 pm. This wait would be better than waiting until November 7th! Moments later, Dr Keogh’s nurse escorted us to his office. He’d had a no-show and could see me now. Tom and I giggle that it was “safari luck,” an expression we’ve always used when we had great sightings on the many safaris we’ve experienced.
Minutes later, Dr. Keogh entered the room, and his expertise and knowledge far surpassed any cardiologists we’d seen in the past. I felt like I was in the best of hands. The first thing he told me was I had to stop taking the dangerous drug Flecainide, which I have been taking for Afib since last October when we were in Ecuador. It was the only afib (for heart rhythm control) that worked for me.
Ecuador doesn’t allow that drug to be prescribed in their country. When I couldn’t any more than the one month’s supply I had on hand, we left Ecuador and headed to Nevada, where a cardiologist said I had terrible valve disease and needed surgery immediately. He didn’t hesitate to prescribe more of the drug until I could have surgery on my valves.
Dr. Keogh explained this drug could kill me with a massive heart attack and I must stop it now. It’s been 26 hours since my last dose. The drug leaves one’s system in about 48 hours, when the Afib undoubtedly will return. When he reviewed all of my tests thus far, and I explained that Flecainide prevented my heart rate from going above 90, the stress test I’d had on Thursday could have been inaccurate.
When we left his office, he said he’d devise a plan for me and get back to me soon. Time is of the essence when I am going to be in what is called persistent Afib within two days when the drug is out of my system. When we returned to our hotel room, my phone rang. It was Dr. Keogh. He decided I needed to retake the nuclear stress test without Flecainide in my system. Then, he could better determine where to go from there, such as a pacemaker, ablation, surgery, or other treatment modalities.
Within minutes, I received a message from My Chart stating I had a new appointment, rescheduled for another nuclear stress test on Tuesday at 9:30 am. It was such a relief, especially knowing by then, I’d be experiencing awful Afib. Dr. Keogh didn’t want me on any Afib drugs for the repeated test. He explained that if the Afib gets too awful, we should head to the emergency room to oversee my care. That was comforting.
Now, I’m scheduled for the angiogram next Friday instead of November 7th. And so it goes with more tests and an upcoming scary few days, especially when we are moving to the new hotel on Monday. Whew.
I can’t express enough gratitude for the love and support I have been receiving from so many of our worldwide friends and readers. You all mean the world to both of us!
To all of our family, friends, and readers in the US, have a safe and enjoyable Labor Day weekend and a happy weekend for our international readers.
Be well.
Photo from ten years ago today, August 31, 2014: